Frustration is part of Alzheimer’s and other age-related memory loss and dementias – frustration for the person themself and the people caring for or interacting with them. Often, an Alzheimer’s person will believe something totally contrary to “reality” – it may be a big thing or a little thing. But explaining, usually, will get you (the non-Alzheimer’s person) nowhere. At best, your explanation will be immediately forgotten. At worst, it will create an argument and distress for both parties – really over nothing that can be resolved.
It’s very hard coping with “it’s white” statements when you know that, in fact, “it’s black”. You can reason, you can scream, but nothing is going to convince that person. It’s especially hard when the person is a parent or grandparent, an individual you respect and who expects respectful behaviour from you.
I’ve read that the best thing is distraction, and I find it works better than any long-winded explanation. But you can’t be obvious about it. Someone might have Alzheimer’s but that doesn’t mean they don’t pick up on patronizing behaviours. So you have to distract to something equally interesting or at least off-the-wall enough to command attention. With luck, the attention paid to that new thing will last long enough for the problematic thing to be forgotten. I call it the ‘look at Bingy’ strategy. Thinking of it that way helps me as much as it does the person with whom I’m dealing.
‘Look at Bingy’ became a family catchphrase for distraction after my mother invented it out of necessity. A guy had come to my father’s business to see him, but only my mother and the dog were there. The guy thought Mom was a fine looking woman and put the makes on her. She didn’t want to offend, but wanted to stop him. So every time he’d start with ‘hows about it’ type things, she’d say “oh, look at Bingy!” He’d turn to see what the dog was doing. This worked for her several times, until he said “Bingy be damned!” in that Bing wasn’t actually doing much of anything. However, it bought Mom time and Dad soon returned. After that, whenever you were in a sticky situation and didn’t know how to get out of it, ‘look at Bingy’ was a reminder to play for time.
So, with Alzheimer’s creating belief that “I don’t live here” or “I don’t have any food, I need to go shopping”, the ‘look at Bingy’ approach can forestall pointless argument. Saying ‘you do live here, remember when you moved in?’ or ‘you have your meals in the dining room’ means nothing to someone who can’t remember where the dining room is. Start talking about something else – the dog or cat or someplace you went on the weekend. Just pick places and people that you think might ring a bell. Dogs and cats are especially good. I’ve found pets are remembered more clearly than many people, and not being able to remember them is less upsetting.
You’re not going to cure Alzheimer’s, you’re not going to bring the person’s memory back, you’re not going to ‘teach’ them anything. The best you can do is listen, acknowledge and, yes, sometimes distract.
Excellent posts that are no longer online it seems: …death of the mind… (a particularly valuable point a way down the page is “if you argue with an Alzheimer’s patient, you get exactly what you deserve”; Alzheimer’s Assoc. Online Community, in which a poster (Dec. 31/10) gives this advice “Ring the bells that still can ring. Forget your perfect offering. There is a crack in everything. That is how the light gets in.” Using Leonard Cohen’s words in this context is inspired – so lovely, so true.